When a person receives a diagnosis of a brain tumor, the first thing to do is GET INFORMED. Below are some of the best sources of information on the net.
One of the best survival tools is a strong support system. Sharing information with others who are going through the same journey is crucial. Remember that NOBODY can predict how long a person will live and doctors are NOT GOD. It is very important to know what the statistics are when dealing with a brain tumor but there ARE survivors and there ARE new treatments being made available all the time. Stay informed. Put on your battle gear and you fight for your life. I once heard a brain tumor survivor declare that she had a brain tumor, the tumor did NOT have HER.

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NEW-- H. Lee Moffitt Cancer/Reseach Center--FUTURE HOME OF THE FRED HILL BRAIN TUMOR FOUNDATION!!!! Details forthcoming.

     http://www.moffitt.usf.edu/clinical/nonc/index.htm

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Al Musella's Virtual Trials: http://virtualtrials.com

     This site lists all the latest info regarding clinical trials throughout the world.  It          
     also has links to support group information as well as online support groups.

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The Healing Exchange Brain Trust T.H.E.BRAIN TRUST (includes the

     BRAINTMR list)  http://www.braintrust.org

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MEMORIAL-SLOAN-KETTERING Memorial-Sloan-Kettering Hospital has an

     overview of Brain Tumors: http://www.mskcc.org/document/WICBRAIN.htm

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DAN COLILLA'S BRAIN TUMOR INFORMATION WEB SITE

      http://www.erols.com/colilla

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Anderson Network 1-800-345-6324 (To talk with another patient with the

     same diagnosis)

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CANCER INFORMATION SERVICE 1-800-4-CANCER For up-to-date cancer

     information--literature and/or counseling

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Brain Maps and Functions

      http://www.neuroskills.com/tbi/brain.html
 

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A Guide to Brain Anatomy

     http://www.waiting.com/brainanatomy.html

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Atlas of the Brain

     http://www.ama-assn.org/insight/gen_hlth/atlas/newatlas/brain.htm

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Brain Anatomy

     http://www.vh.org/Providers/Textbooks/BrainAnatomy/TOC.html

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National Cancer Institute's CancerNet

     http://cancernet.nci.gov

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University of Texas MD Anderson Cancer Center's Treatment Research

     http://www.clinicaltrials.org

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Cancer Care

     http://www.cancercare.org



Lori Hansen:                   http://www.home.gci.net/~serljhansen      

Matt Fullerton dx 9/87:   www.virtualtrials.com/survivematt.cfm

David Bailey dx 7/96:    www.virtualtrials.com/survivedavid.cfm         
                 
Lana Z. dx 1/93              www.virtualtrials.com/surviverebecca.cfm

Carrie Burchardt-Pharr dx 9/98: www.virtualtrials.com/carrie


Rose Frers dx 6/99: http://home.swbell.net/sfrers/Rosalind.htm


Don Flint dx 7/99: http://www.vivekan.org/donwatch/donpix.shtml

Lesley Baldauf dx 8/99: www.davebaldauf.com

Michael Norton dx 1/00: www.geocities.com/Michael_nortonrules/index.html

Margaret Gray dx 4/00:  http://home.alphalink.com.au/~grargall



Bob Conneely dx 1984: www.virtualtrials.com/survivebob.cfm

Ed Nugent dx 3/93: www.virtualtrials.com/surviveed.cfm

Terri Brookes (age 9) dx 7/93: http://www.ains.net.au/kerrynb

Carty Fox: http://www.airofothers.com



Jessica Waterford (age 7) dx 1998:
http://www.h2ofordfamily.com

Gareth Brandon (age 3) dx infantile desmoplastic ganglioglioma 5/97:
www.geocities.com/davb2141

Zach Pierce (age 11) dx cerebellum astrocytoma 1994:
www.makeachildsmile.org/previouskids/00kids/april00.html



Alannah Kathryn McKay: http://www.alannahlives.com

Ed Robinson dx 6/99:
http://homepages.msn.com/SupportSt/alamebrain/index.html

John Lyons : www.johnsfunnyfamily.com

Jeanne Tomlinson: http://creationsafaris.com/tomlinson/

Kristen Kenzig (age 10)  http://www.concentric.net/~Jimkenz/kristen.html

Richard Karpf dx 7/96, (deceased. 10/98): http://members.aol.com/dlsak  

Bereavement List Memorial Links: http://www.geocities.com/Heartland/Bluffs/1117/index.html