This is just a partial listing to get you started. There is a lot of information out there and it can be overwhelming. Time is important and though I am not a doctor yet, I must insist you get your doctor to answer all your questions. Get second, and even third opinions and do your best to get treatment at an actual Brain Tumor Center. I will be adding more links as time goes by.
Links to Brain Tumor Sites and Information
When a person receives a diagnosis of a brain tumor, the first thing to do is GET INFORMED. Below are some of the best sources of information on the net.
One of the best survival tools is a strong support system. Sharing information with others who are going through the same journey is crucial. Remember that NOBODY can predict how long a person will live and doctors are NOT GOD. It is very important to know what the statistics are when dealing with a brain tumor but there ARE survivors and there ARE new treatments being made available all the time. Stay informed. Put on your battle gear and you fight for your life. I once heard a brain tumor survivor declare that she had a brain tumor, the tumor did NOT have HER.
also has links to support group information as well as online support groups.
Home Pages of Glioblastoma (GBM) Patients
Lori Hansen: http://www.home.gci.net/~serljhansen
Matt Fullerton dx 9/87: www.virtualtrials.com/survivematt.cfm
David Bailey dx 7/96: www.virtualtrials.com/survivedavid.cfm
Lana Z. dx 1/93 www.virtualtrials.com/surviverebecca.cfm
Carrie Burchardt-Pharr dx 9/98: www.virtualtrials.com/carrie
Rose Frers dx 6/99: http://home.swbell.net/sfrers/Rosalind.htm
Don Flint dx 7/99: http://www.vivekan.org/donwatch/donpix.shtml
Lesley Baldauf dx 8/99: www.davebaldauf.com
Michael Norton dx 1/00: www.geocities.com/Michael_nortonrules/index.html
Margaret Gray dx 4/00: http://home.alphalink.com.au/~grargall
Home Pages of Those With Other Types of Brain Tumors
Bob Conneely dx 1984: www.virtualtrials.com/survivebob.cfm
Ed Nugent dx 3/93: www.virtualtrials.com/surviveed.cfm
Terri Brookes (age 9) dx 7/93: http://www.ains.net.au/kerrynb
Carty Fox: http://www.airofothers.com
Home Pages Of Children Fighting Brain Tumors
Jessica Waterford (age 7) dx 1998:
Gareth Brandon (age 3) dx infantile desmoplastic ganglioglioma 5/97:
Zach Pierce (age 11) dx cerebellum astrocytoma 1994:
Alannah Kathryn McKay: http://www.alannahlives.com
Ed Robinson dx 6/99:
John Lyons : www.johnsfunnyfamily.com
Jeanne Tomlinson: http://creationsafaris.com/tomlinson/
Kristen Kenzig (age 10) http://www.concentric.net/~Jimkenz/kristen.html
Richard Karpf dx 7/96, (deceased. 10/98): http://members.aol.com/dlsak
Bereavement List Memorial Links: http://www.geocities.com/Heartland/Bluffs/1117/index.html